Phoenix 15 Studios is partnering with Anetra Bey in her efforts to send someone with Scleroderma to an annual patients conference. More info coming soon. Below are Anetras words on the loved one behind her fundraising efforts:
In December of 2015 my sister Kiyanna was diagnosed with Scleroderma. Scleroderma is a rare autoimmune disease. It can affect your skin and internal organs, hardening both. There isn’t a cure for Scleroderma only treatments to help the symptoms.
In Kiyanna’s case she had minimal skin involvement. Scleroderma hardened her internal organs. It hardened her lungs, heart and GI tract leading her to need a double lung transplant and heart transplant.
Unfortunately, she passed away just two months after diagnosis. Since her passing we have done what we can to help those with scleroderma.